RESOURCES
ONLINE
CLINICAL TOOLKITS FOR MEDICAL PROFESSIONALS
Ehlers-Danlos syndromes — GP guidelines 2025 (Medscape)
Ehlers-Danlos Society GP Toolkit
Surgical considerations in hEDS/HSD
Anaesthesia recommendations (Orphanet Journal of Rare Diseases)
ASSESSMENT TOOLS
The Beighton Score — Assessing Joint Hypermobility
Immune Questionnaire — Dr Kara Wada
KEY LITERATURE
Hakim et al. 2017 — Autonomic dysfunction in EDS and HSD, Am J Med Genet Part C
Henderson et al. 2017 — Neurological and spinal manifestations, Am J Med Genet Part C
LECTURES: DR. JESSICA ECCLES, BRIGHTON AND SUSSEX MEDICAL SCHOOL
Hypermobility and autonomic dysfunction: insights from bench to bedside
Hypermobility, POTS, ADHD, autism and the neurodivergent connection
FURTHER VIDEO RESOURCES
Dr Linda Bluestein — YouTube channel
Dr Jessica Eccles — YouTube channel
The Hidden 20%- Neurodiversity YouTube channel
Two expert physicians discuss diagnostics (pre-2026)
ORGANIZATIONS AND HUBS (EDS + NEURODIVERGENCE OVERLAP)
Good Hope EDS Clinic - Toronto
SEDSConnective (UK) — charity specifically built around the hypermobility–EDS–neurodivergence
Ehlers-Danlos Support UK — has a dedicated Neurodiversity resource section and a GP/clinician toolkit you can hand to a physician
AIDE Canada — Canadian, peer-reviewed autism resource hub
Autism Canada — national advocacy org, 50 years running as of 2026
A4A Ontario — runs the Autistic Health Access Project
PATIENTS & MEDICAL PROFESSIONALS FOR BETTER HEALTHCARE
Zebra Drive
... (UPDATED WHENEVER)
Presentations by Ehlers-Danlos National Foundation (Now Ehlers-Danlos Society)
Medical Testing Flowsheet Creation (Claude Projects)
Living w/ EDS (by Ishtar)